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増大特集 神経倫理ハンドブック
文献概要
重篤な小児神経疾患の患者の絶対数は少ないが，その種類は多岐にわたる。たどる経過の個別性は高く，予後予測も難しい。多くの子どもたちは重度の障害を抱えつつ，そのいのちは高度医療に依存している。いのちに関わる判断に臨む両親と医療者は，共に考えを尽くし，その先に子どもの最善を見出す。この過程で重要となる倫理的課題について，医学的事実の把握・協働意思決定・倫理と緩和ケア・障害と社会，の4つの側面から考察する。
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